This directory lists voluntary and private organizations involved in digestive-diseases-related activities for patients. The organizations offer educational materials and other services.

  • Alagille Syndrome Alliance
    • (503) 639-6217
    • https://www.alagille.org
    • Provides a support network for children, their parents, and other with Alagille syndrome.
  • American Caliac Society - Dietary Support Coalition
    • (504) 737-3293
    • Email: amercaliacsoc@onebox.com
    • Provides pracitcal assistance to members and individuals with Celiac diesease and information about the disease to the public.
  • American Dietetic Association (ADA)
    • (800) 366-1655 or (312) 899-0040
    • https://www.eatright.org
    • Provides consumers with direct and immediate access to reliable nutrition information. Callers may speak to a registered dietitian, may listen to regularly updated nutrition messages in English or Spanish, or may be referred to a dietition in their local area
  • American Hemochromatosis Society Inc.
    • (888) 655-4766
    • https://www.americanhs.org
    • Educates the public, the medical community, and the media by distributing the most current information available on hereditary hemochromatosis (HH), including DNA screening for HH and pediatric HH; also facilitates enforcement through an online network.
  • American Liver Foundation (ALF)
    • (800) 465-4837 or (888) 443-7222
    • https://www.liverfoundation.org
    • Promotes awareness and supports research on liver disease; disseminates information about liver wellness, liver disease, and prevention of liver disease with audiovisual and printed materials, seminars, and training programs; promotes organ donation; encourages vaccination against hepatitis B; serves as trustee of transplant funds; and offers support through local chapters.
  • Healthfiner
    • https://www.healthfinder.org
    • This is a consumer health and human services information web site from the United States government. It contains online publications and information about clearing houses, databases, web sites, and support and self-health groups deailing with a variety of health related issues.
  • National Digestive Diseases Information Clearinghouse
    • https://www.niddk.nih.gov/health/digest/nddic.htm
    • The National Digestive Deseases Information Clearinghouse (NDDIC) is a service of the National Institute of Diabetes and Kidney Diseases (NIDDK). The NIDDK is part of the National Institues of Health under U.S. Public Health Service. Established in 1980, the clearinghouse provides information about digestive deseases to people with digestive disorders and to their families, health care professionals, and the public. NDDIC answers inquiries; develops, reviews, and distributes publications; and works closely with professional and patient organizations and Government agencies to coordinate resources about degiestive deseases.
  • American College of Gastroenterology
    • https://www.asg.gi.org
    • Click on "Digest This!" These organizations primarily serve healthcare providers such as physicians and nurses. However, within each there is usually a section for the public, the consumer, and/or the patient.
  • American Society for Gastrointestinal Endoscopy
  • American Gastroenterological Association
    • https://www.gastro.org
    • Click on "Digestive Health Information of interest to the public"
  • American Association for the Study of Liver Disease
    • https://www.aasld.org
    • Click on "Links of Interest"